Prayers requested and a little venting

cmw2212

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In December 2016 I went to the ER thinking I had the flu. I ended up in the hospital for 2 weeks and a colonoscopy and colon resection surgery later I was diagnosed with Colon cancer stage 3b. 8 weeks of recovery and then in February of 2017 I started my FOLFOX chemo treatments. Man the beginning was easy but the longer I went the harder it got. Finished the treatments in August of 2017 and really started on the road to recovery. I started having a longer gap in between Dr visits and everything was looking good. About 2 weeks ago I started having abdominal pain in the area of my previous surgery so last week I went to the ER since it wasn't going away. Spent all day there and had a CT done. The CT shows a mass on my colon and liver that wasn't there on my CT from April of 2018, I am also anemic. Went to see my Oncologist the next day and he started talking about treatments. Then he back tracked and said he had gotten ahead of himself and we need to do some more testing. He wants a Pet scan, MRI of the liver, colonoscopy, blood work and other tests I don't remember. Well they sent it to the insurance company to get the PET scan approved. The insurance coming denied it. They denied it twice last time it was needed and my Dr had to call and request a peer review. The last thing my Dr said before I left was that he understands if I want to get another opinion and to just let him know where I want to go for it. I told him we will hold off until we get some results back and then revisit that subject.


I am unsure of exactly how I feel about this situation currently but deep down I feel like I can't do this again. I am still fairly young at 42 and I have 3 kids from 20-11yrs old. I know regardless of how I feel I will do whatever I can to make sure I am here for them and my wife but I am already tired of this journey. I started filling out my will as a precaution.

Sorry for the long rambling post. If you are the praying kind please send some my families way. If you are not good vibes and thoughts work also.
 
I believe you traded me out of my Jeep Grand Cherokee. I think maybe your wife was needing something to drive back and forth to Raleigh or Chapel Hill. You and your family were very pleasant and seemed down to earth types.

I really do hate to hear this and I'm hopeful that treament options are going to allow you a long, healthy and happy life.
 
Prayers inbound! Fight...Philippians 4:13 "I can do all things through Christ who strengthens me."
 
I am still fairly young at 42 and I have 3 kids from 20-11yrs old.

Don't have the first clue about how you feel or what you've been through because I haven't been there, but based on what you posted, if you can muster the energy and will, fight the hell out of it.

Prayers sent.
 
I believe you traded me out of my Jeep Grand Cherokee. I think maybe your wife was needing something to drive back and forth to Raleigh or Chapel Hill. You and your family were very pleasant and seemed down to earth types.

I really do hate to hear this and I'm hopeful that treament options are going to allow you a long, healthy and happy life.


Thank you. That was a nice Jeep.
 
I'm so sorry you're faced with this yet again, but you have the strength to fight again...your family/friends need you.
We're praying for all of you and hoping the insurance people get it together and do what they're supposed to do instead of being a bunch of a-holes.
 
Hate to hear you have to struggle with this again. Prayers up, be strong for your family; you can face this with help from above.
 
I cannot imagine what you are going through both physically and mentally. I will keep you in my thoughts. We are the same age, and that hits close to home for me. Be strong and know we are here when you need to vent or anything else.


CDJ
 
Don't ever give up.

Been there once myself (stage 4). Fight. Can't imagine how tough it is the second time but with kids there's no choice. Fight it. Screw the insurance people, that will work out. Talk to the doctors.
What treatment's next and let's get this fixed. I will be praying too.
 
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Insurance company approved the PET and I did my bloodwork yesterday. Just waiting on the call to schedule it now. They also made me a followup appt for next week to talk with the Dr about results.

They ended up having to get blood out of my port a cath since they couldn't find any veins to use. The port has been great for me so far.
 
Insurance company approved the PET and I did my bloodwork yesterday. Just waiting on the call to schedule it now. They also made me a followup appt for next week to talk with the Dr about results.

They ended up having to get blood out of my port a cath since they couldn't find any veins to use. The port has been great for me so far.


Yea, ports are no fun but they do make all those needle sticks easier. Still got the scar and it was worth it.

Those PET scans are weird too. That metal box for the radioactive stuff going in the needle always feels weird.

Keep fighting.
 
Yea, ports are no fun but they do make all those needle sticks easier. Still got the scar and it was worth it.

Those PET scans are weird too. That metal box for the radioactive stuff going in the needle always feels weird.

Keep fighting.
Totally agree on the ports! They're great but I was glad to see mine go.
 
Insurance company approved the PET and I did my bloodwork yesterday. Just waiting on the call to schedule it now. They also made me a followup appt for next week to talk with the Dr about results.

They ended up having to get blood out of my port a cath since they couldn't find any veins to use. The port has been great for me so far.
I'm glad the insurance is doing its job at last and hope they keep doing so. I'm very sorry you have to go thru all this.
I'm glad I got a port too, it's not too great feeling it there, but it does save the veins. The weekly flushing for the years after I was done with treatment wasn't great, but it was my choice to keep it, so...
I'm wishing for you a treatment that doesn't make you feel too awful, and a great and healthy life after it's done.
 
Update: Haven't heard anything about scheduling the PET so I called the Cancer center to see what was going on. Young lady was very helpful and said she would call me back. 5 mins later she did and told me I would get a call to schedule this afternoon. About 30mins later I got that call. The first thing they have available is 10/25 which is the day I was supposed to get my test results. Looks like we will have to kick that a little further down the road.
 
Update: Haven't heard anything about scheduling the PET so I called the Cancer center to see what was going on. Young lady was very helpful and said she would call me back. 5 mins later she did and told me I would get a call to schedule this afternoon. About 30mins later I got that call. The first thing they have available is 10/25 which is the day I was supposed to get my test results. Looks like we will have to kick that a little further down the road.
Lifting you and your family up in prayers please let me know if there's anything that you need
 
Peritoneal Carcinomatosis from Colon Cancer

Bad news, that is what I have along with a liver lesion.

I go Friday to discuss chemo treatments.
 
Peritoneal Carcinomatosis from Colon Cancer

Bad news, that is what I have along with a liver lesion.

I go Friday to discuss chemo treatments.
I'm so sorry to hear this.
I will pray the treatments are bearable and lead you to health.
 
Damn it's a bumpy road isn't it? My thoughts are with you and your family man, and trust you get good results with the chemo.
 
Hey brother you and your family are in my prayers.

I'm local to you, if there is anything I can do to help left me know.
 
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