Knifeman 11/8

Discussion in 'Site (Forum) Related' started by knifeman32, Nov 8, 2018.

  1. knifeman32

    knifeman32 Active Member Sponsor

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    Everything went well at the neurologist on Friday. The doctor determined it was safe for Jerek to come off of Keppra. He wanted to wean him off, so he has been down to one pill a day this past week and tomorrow morning will be his last dose. He does want to do an EEG some time in December just to make sure there is no activity without the medicine in his system. Since Jerek had a provoked seizure (the leukemia caused the blood clots in his brain, the blood clots caused the seizure), the neurologist told him he had a less than 5% chance of ever having another one. Yay for one less med and one less thing to worry about.

    Labs this week have been good. His hemoglobin had dropped a little on Monday but was back up today. The white count and neutrophils have held steady this past week. However, Jerek was on steroids this past week which affect the white count. He had the last dose yesterday so his numbers are fully expected to be down by Monday. At least this is what happened the first week he was on steroids. His platelets weren’t bad today but were lower so we expect these to be trending down also. The next half of this course starts off with chemo 4 days in a row for 2 weeks. With Thanksgiving coming up and with the expectation that his counts will be down by Monday, they have decided to give him the next 2 weeks off. He will still go in for lab checks both weeks but will not get any chemo. They are planning to start the next half of this course on Monday, November 26th. With this start date, he will finish this course the week before Christmas and will hopefully be able to enjoy the holiday. He will then tentatively get Christmas week and the week after off, and will begin the maintenance phase on January 7th. The maintenance phase is a lot less demanding and will allow Jerek to start the road to recovery and feeling normal again. As always, we appreciate the continued prayers.
     
    GregB, Sandman_NC, S&WNewb and 17 others like this.
  2. llaht

    llaht Member

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    You've got em Catlyn, and many many more.

    Thank you for the update.
     
  3. ronn47

    ronn47 Where's the Scotch? Charter Member Benefactor Life Member

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    Thanks for the great news.
     
  4. BatteryOaksBilly

    BatteryOaksBilly A SHOOTER Benefactor Life Member Supporting Member

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    Thanks for keeping us in the LOOP!
     
  5. Tim

    Tim I am....an Enchanter. Staff Member Benefactor Charter Life Member

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    We are pulling for you!
     
  6. Miss Lily

    Miss Lily Moderator-Mom-Instructor Staff Member Charter Member Benefactor Supporting Member

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    Thank you Caitlyn. Your family will remain in our prayers.
     
  7. BowWow

    BowWow Happy to be here

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    Hopefully he will be feeling normal sooner than later. Thanks for the update.
     
  8. SPST

    SPST Member

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    Great to hear good news!
     
  9. Chdamn's Wife

    Chdamn's Wife Estrogen Fueled Badass Charter Member

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    This is good news. Hope that you and your family have a wonderful Thanksgiving together.
     
  10. MacEntyre

    MacEntyre Shoot on Sight! Charter Member

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    More prayers sent.
     
  11. Jeppo

    Jeppo Very LARGE Member Supporting Member

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    Go Jerek!!!!!
     
    Button Pusher likes this.
  12. JimB

    JimB Picking it up slowly. Benefactor Charter Life Member

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    In our prayers!
     
  13. teamglock2002

    teamglock2002 Member

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    Thanks Caitlin for the good news. You and Jerek as always remain in my thoughts and prayers.
     
  14. Inglis

    Inglis Member

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    Incoming prayers.
     
  15. Sandman_NC

    Sandman_NC Child Of Christ Charter Member Supporting Member

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    Still praying for you all.
     

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