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Knifeman 6/8

Discussion in 'Site (Forum) Related' started by knifeman32, Jun 8, 2019.

  1. knifeman32

    knifeman32 Active Member Sponsor

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    Jerek had treatment the beginning of May and this past Thursday. Both of these included chemo and a lumbar puncture. He had a lab check halfway between his April and May treatments. His counts had fully recovered by this time, so they restarted his chemo pills at the lowest dose they could possibly give him. They added a lab visit the following week and his counts were stable. When he went in for treatment in May, his counts were still stable. His doctor was happy with his labs and decided to leave his dosages where they were and felt confident that his counts would remain stable. This was the first month he did not have to come in for lab checks and only had to go for the monthly treatment. He has definitely enjoyed only having a monthly visit. On Thursday, his doctor said his counts were exactly where they want them to be. They are slightly suppressed from the chemo pills, but not too low. They had originally discussed trying to increase his dosages again, but knowing how sensitive his body is to the chemo, they have decided to leave his medications alone. The dosage he is getting is enough for him and is doing exactly what they want it to do. Unless something crazy happens, he will only have to go in once a month from here on out. These monthly visits/treatments will continue for about 2 years.

    We were able to go to Hillsville over Memorial Day weekend. This was the first time Jerek was around a crowd (outside) without wearing a mask. He is still hesitant to be around crowds indoors, especially without a mask. This will improve with time. We do miss seeing everyone at the shows, but have enjoyed being able to slow down and spend more time with our kids. We have two backwoods loving kids and couldn’t ask for more.
     
  2. BASIL

    BASIL Member Benefactor Charter Life Member

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    I'm glad to hear this. You both or in my prayers.
     
    Button Pusher likes this.
  3. TheWallrus

    TheWallrus Fathers Demand Reason Charter Member Supporting Member

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    Thanks for the update and the good news. Glad you are able to enjoy the little ones. You all are still in our thoughts and prayers.
     
  4. Jeppo

    Jeppo Ginormous Member Staff Member Benefactor Life Member Supporting Member

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    llaht likes this.
  5. HMP

    HMP Well-Known Member Supporting Member

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    Glad to hear it's looking better and better!
    He's in our thoughts, we miss that duder
     
  6. Burt Gummer

    Burt Gummer Nuts Over Lil D. What’s this switch do? Staff Member Benefactor Charter Life Member Supporting Member

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    Glad Jerek is doing better. Miss seeing you guys at shows
     
  7. Amps 13

    Amps 13 Well-Known Member Supporting Member

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    Great news for sure!
     
  8. Papermaker

    Papermaker Happy to be here Life Member

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    Steady progress is such great news!!! We think about you and your family all the time and look forward to seeing you all again. Glad the kids are doing well also. Great news!!!
     
  9. ronn47

    ronn47 Where's the Scotch? Charter Member Benefactor Life Member

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    That is great news to hear.
    Thanks for sharing with us.
     
  10. BurnedOutGeek

    BurnedOutGeek What's this button do? Staff Member Benefactor Charter Life Member

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    Great news, thanks for the updates!
     
  11. Chdamn's Wife

    Chdamn's Wife Estrogen Fueled Badass Life Member

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    That’s wonderful news!
     
  12. Stobie

    Stobie Stobie-Wan Kenobi Benefactor Supporting Member

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    Awesome news.
     
  13. llaht

    llaht Member

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    i agree with the sentiments expressed above. been a long journey and we're all happy in regards to the success of the treatments.

    I am sure that was a great family trip (finally?)... prayers for continued progress.
     
  14. Millie

    Millie Get on with your life!!! Supporting Member

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    May the good progress continue, and may things keep getting better for all of you.
     
  15. Stick

    Stick Senior Member

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    Good news! Sometimes our prayers are answered the way we hope they will be. I have never met Jerek but I have followed his progress through this forum. He has a LOT of friends - and total strangers like myself- pulling for him.
     
  16. JohnFreeman

    JohnFreeman The bane of my existence Benefactor Charter Life Member

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    Fantastic news. I'm a friend whose never met you all, but I'll keep you in my prayers.
     
  17. BatteryOaksBilly

    BatteryOaksBilly A SHOOTER Benefactor Life Member Supporting Member

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    Thanks for ending this old man's day on a good note...…………..
     
  18. BowWow

    BowWow Happy to be here

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    Good to hear........ You are getting closer to back to normal!
     
  19. JT

    JT If you can't say something nice ... Benefactor Life Member Supporting Member

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  20. Jeppo

    Jeppo Ginormous Member Staff Member Benefactor Life Member Supporting Member

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    How are @knifeman32 and the clan doing? Anything you need?
     
  21. GreatGazoo

    GreatGazoo Li'l Green Guy Supporting Member

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    I was thinking about this a couple of days ago, wearing the CFF "Got your Back" tshirt. Hope all is well.
     
    gunbelt and TheWallrus like this.
  22. knifeman32

    knifeman32 Active Member Sponsor

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    I'm doing well fellas. Of course there are good days and bad days but I am hanging in there. I am in what is called the "maintenance" phase. Essentially I go in once a month for IV chemo along with a lumbar puncture with chemo administered into my CNS as well. I take a set of daily chemo pills along with another set of weekly chemo pills. Of course there are dozens of other pills as well. I feel good most days and am truly thankful for the support system I have, including you guys.

    I have about a year to a year and a half left. I actually go in on Thursday for chemo and labs. It's always a nerve racking day... especially with the Covid-19 stuff. So please do say a prayer for us.

    I pretty much stay isolated from the free world, which isn't so bad when you live where I live.

    I truly thank God for all of you that check in on me and pray for us.
     
  23. teamglock2002

    teamglock2002 Member Life Member

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    Good to hear from you Jerek. Glad that in general all is going pretty good for you. We continue to think of and Pray for you and your family.
     
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  24. JohnFreeman

    JohnFreeman The bane of my existence Benefactor Charter Life Member

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    Great to hear from you!

    Please check in often, as I know there's a lot of us who keep you and your family in our prayers. I hope that it won't be long before you're fully well and I can come shop vintage 22 Winchesters face to face from you!