Keeping you and your family in our prayers.
I'm really sorry you have to go thru this again! I can't imagine doing mine all over. I hope you have good results from the chemo.Today went and talked about the treatment. We are going to start with the Folfox again with 2 other things added in. Folfox was tough last time but I made it thru so I have some experience with it. Not sure how the other 2 chems are gonna hit me though. We do this every 2 weeks for 2-3 months and then do a scan to see if it is working.
I am ready to get started but I also am still considering doing the 2nd opinion thing.
This will start up on 11/7/18 and go from there.
If you get the mouth soreness, try Italian Ices....they feel so good!! Lol. Or Jello that's made a little "looser" than normal so you can swish it around and cool your mouth off....I made lotsa Jello during my treatment, and sometimes it was all my three meals because it was one thing that didn't make me puke. You probably know about these "remedies" already, though.This treatment feels stronger than the last one I had and I feel like crap after only 2 days. I am guessing a higher dosage since we are actively fighting the cancer instead of it being a preventative thing.
I have a couple of guns I am considering listing up to help pay some expenses but not sure if I should do it now or wait.
If you get the mouth soreness, try Italian Ices....they feel so good!! Lol. Or Jello that's made a little "looser" than normal so you can swish it around and cool your mouth off....I made lotsa Jello during my treatment, and sometimes it was all my three meals because it was one thing that didn't make me puke. You probably know about these "remedies" already, though.
I really hope you don't get too crappy-feeling. I know it's brutal. We're praying for you.
I'm sorry you didn't get better news, but it sounds like they're doing everything possible for you, and who knows what better treatments might come along in a couple of years.Went to UNC Monday for the 2nd opinion. The Dr there is very nice. She had reviewed all of my info and told me that if I had seen her originally she would have followed the same treatments I had done.
We discussed timelines and she said the 2-3 years is just the median timeline for someone diagnosed with stage 4 metastatic colon cancer. She said with my age and the fact I have no other medical issues but the cancer I should be able to make 5 years or maybe more but there are no guarantees.
She also said she is going to follow my case and when the chemo stops being effective that we can look at clinical trials.
So there is no cure, I am still dying but I may get some more time to spend with the family.
Prayers out for you and your family.
Thanks god we don't yet have Gov't bureaucrats making treatment decisions.
Finished another round of Chemo last Friday. I am feeling a little better now but still not back to normal. We are skipping chemo next week so I can be almost normal over the Christmas holiday. Next Chemo is scheduled for Jan 2nd. Thank you everyone for the prayers and well wishes.
I hope your tests give good results, I know you're having a tough time.Wanted to give everyone a quick update.
If my math is correct I have one more treatment for this cycle which will be next week. After that we need another CT and I have an appointment at UNC for June 26th to meet the surgeon and oncologist to discuss the next course of treatments. This one has been tough but better than the alternative.
I'm glad you're feeling better, but sorry you still have some issues....I hope for good reports from the docs.Update 9/23/19
Went to UNC to see the surgeon again. I still have a bloodclot in my splenic vein so she is sending me to a specialist in Wake Forest for another opinion. Chemo has really sapped my endurance but I have been off chemo for almost a month now and at times I am feeling a little better.